Avaliação da dor e da qualidade de vida de pais de crianças com deficiência
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Data
2019-06
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Santos, Marilucia Vieira Dos
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Objetivo: Avaliar a dor e a qualidade de vida de pais de crianças com deficiência. Métodos: Estudo de campo, descritivo e explicativo, de abordagem quantitativa, realizado em 2019, com 20 cuidadores de crianças com deficiência atendidas ou indicadas pela APAE (Associação de Pais e Amigos de Excepcionais). Foi utilizado o instrumento World Health Organization Quality of Life (WHOQOL – BREF) e um questionário para caracterização dos participantes e das crianças cuidadas. Para analisar os dados de idade da amostra, número de filhos e número de atividades físicas na semana, os valores foram descritos através da média e desvio padrão. Nos demais dados de caracterização da amostra e das crianças, utilizou-se o número total e a
porcentagem. Para os resultados dos domínios WHOQOL-BREF, foram considerados os valores de média, desvio padrão, mínimo e máximo. Resultados: Foram encontrados 18 (90%) cuidadores com dores físicas e destes, 10 (56%) classificaram a dor como crônica. A prevalência foi do sexo feminino 17 (85%) com idade média de 40,3 anos (±6,28). Das crianças, 07 (35%) apresentaram diagnóstico de Paralisia Cerebral e 06 (30%), diagnóstico de Síndrome de Down. Considerando os escores obtidos através do WHOQOL-BREF, verificou-se que a média do domínio social foi de 68,21 (±19,53); a média do domínio físico, de 67,73 (±17,53); do meio ambiente, 67,12 (±14,37); do psicológico, 67,03 (±20,14). Conclusão: Os cuidadores avaliaram sua qualidade de vida como regular, em todos os domínios relações sociais, físicos, psicológico
e meio ambiente. Ainda, a maioria relatou sentir dores físicas, ligadas aos cuidados à criança com deficiência.
To evaluate the quality of life of parents of children with disabilities. Methods: A descriptive and explanatory field study, carried out in 2019, with 20 managers of children with disabilities attended or indicated by APAE (Association of Parents and Friends of the Exceptional). The World Health Organization Quality of Life (WHOQOL - BREF) and a questionnaire were used to characterize the participants and the children cared. To analyze the age of the sample, number of children and number of physical activity in the week, the values were analyzed by means and by standard deviation. The other characterization data of the sample and the children use the total and the percentage. For the results of the WHOQOL-BREF domains, rate, standard deviation, minimum and maximum values were considered. Results: We found 18 (90%) caregivers with physical and corporal capacity, 10 (56%) classified the pain as chronic. Age was 17 years (85%) with a mean of 40.3 years (± 6.28). Of the children, 07 (35%) diagnosis of Cerebral Palsy and 06 (30%), diagnosis of Down Syndrome. The WHOQOL-BREF scores showed that the mean social domain was 68.21 (± 19.53); the mean of the physical physical, 67.73 (± 17.53); of the environment, 67.12 (± 14.37); of the psychological, 67,03 (± 20,14). Conclusion: Caregivers assessed their quality of life as regular, in all domains social, physical, psychological and environmental relationships. Still, a child who relates to the child, with care for the child with a disability.
To evaluate the quality of life of parents of children with disabilities. Methods: A descriptive and explanatory field study, carried out in 2019, with 20 managers of children with disabilities attended or indicated by APAE (Association of Parents and Friends of the Exceptional). The World Health Organization Quality of Life (WHOQOL - BREF) and a questionnaire were used to characterize the participants and the children cared. To analyze the age of the sample, number of children and number of physical activity in the week, the values were analyzed by means and by standard deviation. The other characterization data of the sample and the children use the total and the percentage. For the results of the WHOQOL-BREF domains, rate, standard deviation, minimum and maximum values were considered. Results: We found 18 (90%) caregivers with physical and corporal capacity, 10 (56%) classified the pain as chronic. Age was 17 years (85%) with a mean of 40.3 years (± 6.28). Of the children, 07 (35%) diagnosis of Cerebral Palsy and 06 (30%), diagnosis of Down Syndrome. The WHOQOL-BREF scores showed that the mean social domain was 68.21 (± 19.53); the mean of the physical physical, 67.73 (± 17.53); of the environment, 67.12 (± 14.37); of the psychological, 67,03 (± 20,14). Conclusion: Caregivers assessed their quality of life as regular, in all domains social, physical, psychological and environmental relationships. Still, a child who relates to the child, with care for the child with a disability.
Descrição
Palavras-chave
Crianças com deficiência; Qualidade de vida; Pais; Fisioterapia; Children with disabilities; Quality of life; Parents; Physiotherapy
Citação
TRAMONTINA, Larissa. Avaliação da dor e da qualidade de vida de pais de crianças com deficiência. 2019. Artigo (Graduação) – Curso de Fisioterapia, Universidade do Vale do Taquari - Univates, Lajeado, 27 jun. 2019. Disponível em: http://hdl.handle.net/10737/2674.